Parents who lose their nine -year -old son from cancer – are also ill to learn their younger sister – originally in a court fight with more than £ 100,000 donations made for them.
Lego-Laving Kyle Morrison died in 2020 after a diagnosis of an incurable brain cancer, leaving the parents, Craig Evicon and Victoria Morrison.
Prior to his death, Velvisars donated thousands of more and “memory making” experiences to the family to pay for treatment in the US, but Kovid intervened and never traveled.
The couple had destroyed a daughter, Ruby-Rose, now two, but to know that she too was seriously ill with a genetic metabolic disease and was unlikely to be beyond this heat.
He then launched a gofundme page – under the name “Ruby -Roses Making Memories Fund” – trying to take her to Disney in Florida to meet her beloved Minni Mouse.
But when he tried to claim around £ 100,000 from the funds donated to Kyle, he was told that it would not be paid – because ruby -Rose is not cancer, but rather a different but equally devastating situation instead.
The parents of the Cheshnt, now fighting the donation, who keeps money, gold geese in the High Court, saying that money should be spent to benefit their little girl.
However, the charity says it cannot pay, as it was donated to Kyle when he was a cancer patient and can now only be spent on a “similar” position for him or on another child.
In one day testing, Judge Deputy Master Mark Glover was told how Kyle was detected a rare cancer – spreading internal Ponteen Glio (DPIG) – in 2019 when he was only eight.
The attempt to help raising funds for their treatment and helping to create most of their days began with a Facebook campaign through Group One Pound Warriors, which encourages donors to pay small but regular amounts for charitable reasons.
However, the group then passed by the caleal’s Essex-based Gold Geez, a charity that works for the benefit of cancer-stricken children.
In late 2020, for treatment and kyle was filled with money, but Kovid stopped his journey and was very ill until the restrictions were reduced.
He died in October that year.
The grieved couple, who also have another son, then went to their daughter Ruby-Rose in 2022, but also detected a devastating disease, known as a megadel syndrome, a genetic metabolism condition characterized by high levels of acids in the body, which is usually malignant in early infant.
Representing themselves, the couple told the judge that he was unlikely to be beyond this heat, but continues to fight their illness.
Describing the deputy master Glover, he believes that the money collected for Kyle should now go to her daughter, Mrs. Morrison said: “We just want to make as much memories as possible.”
However, for charity, Barrister William Mofet said that money can only be used for the purposes that were donated by Velvisher – children with cancer, not for other diseases.
And a contract that the couple agreed to say that, if the money was not spent on the treatment of their son before dying, it would go to another DIPG test or a child in the same “position.
However, he said that there was no way that Donors could not have been for money to benefit Ruby-Rose, as it was not born even when it was pledged.
“Her illness and desire to help this family could not inform the donors in 2020,” he argued.
He said: “Gold Geez is a cancer donation, it is on its logo.
“There are other donations whose objects will include helping someone with ruby-rose conditions, but it would not be appropriate to wander out of hair cancer disease for gold geese.
“Donation is trying to do what they are legally for their purpose.
“If the court tells us otherwise, they will have authority, but we don’t think this is the correct answer here.
“This is just an unfortunate fact that Mr. Avisan and Mrs. Morrison are a child who is ill with a different disease.”
However, the couple insisted that the contract allows to spend money for the benefits of ruby-Rose, as they believe that it comes under the definition of a “equal” case, as stated in the agreement.
And he said that, although he had agreed on the contract, the situation changed when his little girl also came to know about life-limited disease.
“This is a father with a mother and a broken heart,” said Mr. Avisson.
“We are now five years below the line. Things have completely changed. The world has changed in a tough manner.
“We could not guess what was going to happen, we are humans. Kyle passed away. His sister Ruby-Rose is a very rare and very similar position.
“If she makes it another [month]He has underlined the hospital expectation. We are just trying to give these memories a chance to make these memories while still time and we can do physically. ,
He also said that he continues to promote the cause of childhood cancer and that, if any donor specially said that he wanted his money to go on research, the couple would not object.
During a day of argument at a hearing held through a video link, the judge described Mr. Avisan and Mrs. Morrison as a “courageous family”, who faced disastrous bad luck.
But he said: “The part of the court’s work is to find out the intentions of the donors. The numbers are large. At least 1,300 are different payers.
“Was it an intention that it should go to a charity for people other than your son Kyle or that it should go to Kyle so that it is near it when it is near it to use it for you to you, as you like, is also included in relation to Ruby?”
Money can be spent on ruby-Rose, the decision on this will be given at a later date.
