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Lili Reinhart has shared that she was diagnosed with endometriosis after doctors dismissed her pain,
29 year old actor Posted a series of photos of herself in the hospital on Thursday, along with a lengthy caption about her diagnosis last week after laparoscopic surgery.
“Last year, I saw a urogynecologist and was diagnosed with interstitial cystitis.” Riverdale alum wrote. “I was told there was no cure for my symptoms – and no lasting relief. Visited the hospital three times. Multiple urologists and gynecologists. And none of them seriously considered endometriosis as the underlying cause of my experience.”
Endometriosis is “an often painful condition in which tissue similar to the inner lining of the uterus grows outside the uterus,” according to Mayo Clinic,
In the Instagram post, Reinhart said that endometriosis wasn’t mentioned as a possible source of her pain until she worked with “two different pelvic floor therapists.”
She then insisted on getting an MRI, and discovered she had adenomyosis, a condition similar to endometriosis. However, adenomyosis occurs “when the tissue that lines the uterus begins to grow into the muscle wall of the uterus,” per Mayo Clinic,
Reinhart added, “I met with an endometriosis specialist who helped me decide that laparoscopic surgery was the next step I wanted to take.” “Whereas, at the same time, another gynecologist told me ‘maybe I don’t have endo’ and I should just take the pill.”
“I’m glad I trusted my body and listened to my gut and will continue to advocate for others to do the same. Endometriosis is a highly misunderstood disease, with often a 4-11 year lag between symptoms and definitive surgical diagnosis. According to the World Health Organization, it’s estimated that 1 in 10 people with a uterus have endo.”
With pictures of myself in a hospital bed look both ways The star shared a photo of a note which read: “Believing in women’s pain shouldn’t be revolutionary.”
Reinhart later posted a photo of herself in the hospital on her Instagram Stories. In the caption, she expressed how much it meant to her to receive an endometriosis diagnosis after the pain went away.
“I don’t remember taking this horrible photo. But I guess I wanted to capture a moment of validation post-surgery,” she wrote. “As soon as I saw my doctor I asked, ‘Did you get this?’ And they said, ‘We found endo.’ And I felt so validated and relieved that I decided to listen to my body and have this surgery.
Reinhart initially spoke openly about her health challenges in January 2025. At the time, he said it was “the hardest year” he had had due to symptoms of interstitial cystitis, a condition that causes irritation and inflammation of the bladder.
He experienced his symptoms during filming American sweatshop In Germany in 2024.
“On the third night I was there, I developed symptoms of a UTI,” she said. Self In January. “I’m like, ‘I’ve had a UTI before. I’m a woman. We all know how that feels.'”
Following a urine test, a “minor infection” was detected and the actor was sent home with antibiotics. However, he was still forced to go to the hospital twice after feeling the need to urinate. Once she returned to Los Angeles, she sought out specialists before ultimately being diagnosed with interstitial cystitis.