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Jesse Nelson She said it was her mother who spotted the first signs of her twin daughters’ rare health condition after medical staff missed the symptoms.
January 4, singer shared this devastating news Her daughters, Ocean Jade and Story Monroe Nelson-Foster, were diagnosed with spinal muscular atrophy type 1 (SMA).
In an interview with Sky News Britain tonight Speaking on Thursday’s (January 29) show, the 34-year-old said that despite regular check-ups by professionals, early symptoms – particularly a lack of movement in his legs – went unnoticed.
“My mum just discovered the sign and that’s what’s really concerning,” she said.
“It just goes to show how little awareness there is,” Nelson said. Calls for UK to include SMA screening During a routine newborn exam.